I've had Rheumatoid Arthritis for 5 years. It's stubborn and aggressive and doesn't respond well to treatment.

Over the last 6 months or so, I've had increasingly uncomfortable symptoms in my feet and legs;
- Random patches of numbness in legs
- Random feelings that someone is pressing ice against my legs
- Numbness and tingling that starts in feet and shoots up into calves
- Persistently icy feet even though I am the hottest person ever
- Thigh/hip/back is the major one, scans have shown nothing and I can barely walk. It's tingly, numb, feels heavy like my thigh bone is made out of lead.

The latter has led my rheumatologist to believe I have some kind of neuropathy and she suggested medication. Apparently it is not uncommon with RA and should settle when my RA does. That said, the last 6 months have been the best 6 months so far, so it does seem strange. The nerve symptoms started about the same time as starting cimzia (August 2013) but I've been off it since February and they haven't gone away. It might just be coincidence but apparently anti TNFs can cause neuropathy which makes me nervous as I have my first Humira injection this week!

Does anyone else have any experience of neuropathy and can tell me a little about it? Can it really just 'go away'?

I'm feeling a bit scared and quite worried!

hi, I have most of these annoying things too and was told it goes hand and hand with ra and our meds mix, the podiatry were good at trying to explain to me but did advise to see rummy,i am going to nurse soon and have a very long list of questions I want answered,ask the rummy its their job to answer queries or even the gp about it, do not leave it ask now, post how you get on,dorothy

You are not alone with that one. Lots of us have that problem and the recommended approach is to spend some time before an appointment writing a list of all the questions you need to ask. Most health professionals are pleased to see a list!